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Knowledge Creation

Documenting Our Experience

We believe that women living with HIV are the experts in their own experience and therefore it is essential for them to lead, share and generate the creation of knowledge including research.
This means that we support and advocate for women living with HIV to produce tools, research and materials that most matter to them. We support community based and feminist participatory action research frameworks and methodologies.


Demanding health for all: Drawing from people living with HIV in a time of COVID.

This report looks at each of the three key pillars of universal health coverage (UHC) through the lens of our times. We look at the experiences of people living with HIV during the COVID-19 pandemic and consider what lessons can be drawn from their experiences to help bring about the realisation of health for all.

ICW UNAIDS Focus Group Report on Gender Inequality/Priorities in the HIV Response

ICW led a focus group with women and girls living with HIV to talk about our priorities in the next UNAIDS strategy.

ICW, GNP+, and Y+ Global UNAIDS Focus Group Report on Health Services

ICW collaborated with GNP+, and Y+ Global to lead a focus group with people living with HIV to talk about our priorities in the next UNAIDS strategy.

Living with HIV in the Time of COVID

A report from a joint survey by GNP+, ICW and Y+ Global on the impact of COVID on networks of people living with HIV.

Early Infant Diagnosis

This qualitative research sought to respond to an urgent need to explore the perceptions, values and preferences of women living with HIV regarding early infant diagnosis, in order to understand what accounts for the ‘loss to follow-up’ in terms of early diagnosis and treatment of infants.

Gender in HIV Research

ICW in partnership
with the International AIDS Vaccine Initiative (IAVI) saw this collaboration as an opportunity to create several dialogue platforms between researchers and women living with HIV and to create further possibilities for collaboration.

Body Mapping HIV Treatment Side Effects

This arts based research documents women’s experiences of side effects using body mapping. We wanted to learn from the personal stories of women and start developing new ways of understanding, talking about, and dealing with side effects.

ICW Asia Pacific Survey Report - Impact of Living with HIV and COVID

ICW Asia Pacific partnered with UNAIDS to conduct a survey on the impacts of the COVID pandemic on women living with HIV in Asia and the Pacific.

ICW Asia Pacific Paper - Impact of Living with HIV and COVID

ICW Asia Pacific partnered with UNAIDS to conduct a survey on the impacts of COVID pandemic on women living within Asia and the Pacific. This is the paper that was developed from the report.

An Overlooked Epidemic: Mental Health and HIV

Supporting mental health and emotional well-being is one of the most overlooked aspects of treatment, care and support within the HIV response. HIV diagnosis can cause trauma, anxiety and depression, or exacerbate existing anxiety and mood  swings and mental health disorders. Anxiety and self-stigma around job and housing security, self-esteem, status disclosure and building healthy romantic relationships, including fear and anxiety due to HIV criminalization, can affect the mental health, self-esteem and emotional well-being of people living with HIV. Even within HIV activism and the workplace, we replicate traumas and social inequalities perpetuating cycles of oppression, trauma and stress on those within our community. In this session, women living with HIV will share their lives work through research and advocacy in the realms of mental health and resilience in the context of  gender -based violence, HIV criminalization, health care violations, sex worker, poverty and inter-movement aggression. 
Lillian Mworeko, Uganda, Mental Health and SRHR 
Olena Stryzhak, Ukraine, Gender Based Violence + HIV 
Sara Thara Maga, Nepal, Young Women and Mental Health
Vanessa Johnson, USA, Macro and Micro Aggression and Movement Trauma - Lateral Violence 
Chair: Morolake Odetoyinbo, Nigeria/US

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